rose ▪ bud ▪ thorn - october 2026
rose
- I had a great start studying for this semester :) I set up everything on the 4th: Downloaded all materials, signed up for all live sessions, put all dates in the calendar, ordered all books I need, and hit my reading goal all in one day, despite my struggles (aided by medication and lots of support from my wife). I was very consistent with it since!
- Went hard at the gym when I had painfree times in the middle of the month.
- Sent a care package filled with coffee, tea, baked cookies, and cat socks to a friend.
- I finally bought FFXIV and a subscription after spending ~330h in the Free Trial.
- Treated myself to nice stuff this month and going out more with my wife.
- I asked a matcha café in the city to please add allergen information to their order terminals and they did!
- I went to the Spiel convention in Essen.
- Got a good annual performance review, with lots to look forward to in the next few years, and applied for additional courses paid for by my employer.
bud
- Learning how to deal with (or entirely avoid) food noise that has plagued me for years. It's going well.
- Working on a big blog post that still takes me a lot of time... it is draining...
- Planning a cool project with the Gazette people. The blog has been a bit quiet, but not forgotten.
thorn
- Most of the month, I suffered with extreme exhaustion, fatigue and pain. Sleep was great and plenty, but I was still soooo tired all the time and could barely do or think anything. Dealt with a lotttt of burning pain in my bones, muscle weakness and pain, and under my skin as well as in my hips and lower back; standing was hard. It brought back wishes for a foldable wheelchair 1. These monthly posts made me realize there is always some short of illness stuff going on, and this month was especially bad, so next month I will switch medication. Goodbye, adalimumab.
- I made a mistake in my study plans and it affected my entire planning until the exams in March :/
- I've been having issues with my main laptop and random restarts and kernel panics... may need to wipe and reinstall.
- My indoor spin bike broke and we haven't managed to fix it yet :(
- Time passed super fast. I blinked and it had been weeks between messages, emails, blog posts... I had to prioritize differently this month, but I hope I'm gonna be better next month.
☁️☁️☁️
pics
Bear with Krobus, poor guy doesn't understand the game...
Published
At the moment I have none for days like these, but I would love to have one so I am not bound to the home as much and my wife can at least push me on a walk or to the café, even when that is still exhausting; at least I could experience the outside without having to walk and having to sit down from exhaustion very soon. It would also save me from the barren wasteland that events and conventions usually are for seating. I'm aware that there is still a lot of stigma around using wheelchairs, walking sticks and the like, and there are still ignorant strangers out there who think you are faking it if you can get up from your wheelchair for a minute or so or don't need it literally all the time, but my comfort and mobility is honestly more important to me than the opinions of jackasses. I've wished for a wheelchair like that since I was just about 15 years old, for reference. Half my life. I just don't know where to get a lightweight, affordable, possibly secondhand one yet, because insurance wouldn't pay for that in this case.↩